Efforts are underway to discover the best way to incorporate patients’ experiences with new treatments when reporting findings from clinical trials.
Researchers refer to these patient perspectives as patient-reported outcomes. Having patients report their experiences directly, instead of having doctors report how the patients are feeling, can help researchers better understand the interplay between progression-free survival, overall survival, and quality of life.
Here you will find four articles that will help you learn more about patient-reported outcomes and how they are being integrated into clinical trials.
- NIH Collaboratory: Living Textbook of Pragmatic Clinical Trials: Patient-Reported Outcomes in Clinical Trials
- Journal of the American Medical Association: Guidelines for Including Patient-Reported Outcomes in Clinical Trials
- Clinical Trials Arena: Challenges and Opportunities for PROs
- NIH: Collecting Patient-Reported Outcomes is Feasible in Cancer Clinical Trials