Metastatic breast cancer patients, advocates, and researchers have been working together to develop registries and databases where patients can share information about their tumors as well as their treatments, side effects, and quality of life to help advance metastatic breast cancer research.
MBC Connect is a free, interactive, web and mobile-friendly patient registry. By using the app you help to create a real-time database that can improve our understanding and treatment of metastatic breast cancer. The app is available in English and Spanish.
The MBC Project collects patient data along with blood and tumor samples. Scientists believe studying the DNA in the tumor samples patients provide will help them develop new and better treatments for metastatic breast cancer.
The MBC Project is part of Count Me In, which aims to enroll more than 100,000 patients living with all major cancer types, as well as rare cancers.
You can read more about these program in the Time magazine article below.