Living with MBC
What is it like to live with Metastatic Breast Cancer?
In this issue, we provide insights via links to a video of Dana-Farber social worker Liz Farrell discussing life with MBC with two patients and LBBC’s Guide to the Newly Diagnosed.
Below you will also find a link to stories on MBCN by patients who’ve lived with metastatic breast cancer for 10 years or longer.
- Dana-Farber: Living with Metastatic Breast Cancer
- Living Beyond Breast Cancer: Living Beyond Breast Cancer’s Metastatic Breast Cancer Series: Guide for the Newly Diagnosed
- Metastatic Breast Cancer Network: MBCN: 10+ Years with MBC
Additional Metastatic Breast Cancer Resources
ABCD: After Breast Cancer Diagnosis
Provides phone-based one-to-one mentoring to those affected by breast cancer as well as a personalized mentor matching service for breast cancer patients, their families and friends.
American Cancer Society
Comprehensive cancer information.
Anne Appleseed Project
Information about natural cancer therapies from the patient perspective.
A message board and listserv for women with metastatic disease.
Comprehensive information about brain metastases from a patient perspective.
Comprehensive information about breast cancer detection and treatment.
A national toll-free hotline staffed by breast cancer survivors. Phone: 1.888.718.3523
Developed by the American Society of Clinical Oncology (ASCO), Cancer.Net contains comprehensive and up-to-date information for all people affected by cancer. All content is approved by cancer doctors who are members of ASCO.
A comprehensive website offering free publications in English and Spanish as well as a series of support groups and educational seminars for employees with cancer, their employers, coworkers and healthcare providers.
CancerCare is a national nonprofit organization that provides free, professional support services to anyone affected by cancer. It’s programs, including counseling, education, financial assistance and practical help, are provided by professional oncology social workers and are completely free of charge. CancerCare provided help to more than 108,500 people last year.
Cancer Information and Support Network
Patient information and support tailored to one’s situation. The site also contains a Breast Cancer 101 for those who want to learn more about the biology of cancer and how anti-cancer drugs work.
Cancer Support Community
Provides a network of professional programs of emotional support, education and hope for people affected by cancer at no charge so that no one faces cancer alone.
A user-friendly, multimedia women’s health information site created by Donnica L. Moore, MD.
Dr. Susan Love Research Foundation
Comprehensive information about breast cancer prevention, detection, and treatment.
Inflammatory Breast Cancer Research Foundation
The only cancer research organization specifically targeting IBC.
Inflammatory Breast Cancer Support
Provides information and support for individuals with IBC.
Lazarex Cancer Foundation
Provides financial assistance to patients traveling for participation in clinical trials.
Living Beyond Breast Cancer
Provides information and support for women affected by breast cancer.
Nonprofit organization that provides education and support for patients with metastatic breast cancer.
Metastatic Breast Cancer Alliance
A coalition of nonprofit groups, advocates, individuals living with metastatic breast cancer, and industry partners committed to improving the quality of life for women and men living with metastatic breast cancer.
Metastatic Breast Cancer Network
Advocacy group for women with metastatic breast cancer.
The social network for women facing breast cancer.
National Cancer Institute Breast Cancer Home Page
Educational information about breast cancer.
Helps patients bring together their most important resources to assist them in their care.
Education and support for Latinas affected by cancer. The website is presented in both English and Spanish.
Patient Advocate Foundation
Helps patients with chronic, debilitating and life-threatening illnesses remove obstacles to healthcare such as medical debt, access to insurance, and job retention.
An online breast cancer support network for people affected by breast cancer.
Share Cancer Support
New York City self-help support organization for women with breast or ovarian cancer.
Women’s Cancer Resource Guide.
Susan G. Komen
Features information about breast cancer diagnosis, treatment, and support.
Theresa’s Research Foundation
Funds research for Metastatic Breast Cancer treatment options and quality of life.
Triple Negative Breast Cancer Foundation
Provides discussion forums and educational programs for women with triple-negative tumors.
Triple Step Toward the Cure
Information, emotional support, and financial assistance for patients with Triple Negative Breast Cancer.
Young Survival Coalition
Information and support for young women with breast cancer.